Brian went and met with our pediatrician yesterday. He basically let him know that we felt we were brushed off by the pediatric neurologist last month. Brian explained that we’ve brought several concerns up to the pediatrician, but nothing has ever been explored (Caleb has had body odor since the age of 5…not normal in my opinion; gray hairs…again, not normal; sensory issues…doesn’t like his socks, underwear, etc touching him; etc).
Our pediatrician was very understanding and willing to step up and handle the situation. He has ordered a battery of tests, and then we will be seeing another doctor in Atlanta once we’re done with these baseline tests. Brian has taken Caleb to the hospital now for them to draw some blood. They will use the blood work to check several things…thyroid, cortisol, IgE, metabolic stuff, blood count, etc. We’re waiting to hear from the pediatrician’s office on an MRI and an EEG.
We are hopeful that these tests will bring us closer to finding out the cause of Caleb’s tics. While we are not doubting Tourette Syndrome, we just want to be absolutely positive. By reading and doing research, we have noticed that tics can be caused by so many other things…allergies, hormonal abnormalities, etc. Besides, with all of the upcoming changes to healthcare and insurance, it is more important than ever for us to figure this all out before it’s too late. So, we’re being as proactive as we can for Caleb.
I will keep you all posted on the outcome of these tests. Thank you for your continuous support and prayer. We truly appreciate it, and we are grateful to have so many family and friends thinking of us during this time.
Park City Utah
2 years ago
5 comments:
I hope you find out soon. I bet you're anxious. G'luck.
Good luck! Your Caleb is super brave (I still pass out if I need to give blood, haha) Hopefully the new docs are much more attentive!
Glad your pediatrician is stepping up to the plate. Thanks for the update!
What you think may be silly things to report may be things of great importance to his diagnosis. YOU have to be Caleb's advocate in this--do not give up because one doctor fluffed you off. Remember that the squeaky wheel gets oiled. If you don't do it, NOBODY will. So, don't ever feel like you are being silly or too pushy.
I'm really glad that you're pushing to get what you know you need for Caleb. I hope the tests will help!
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